Diagnosis of the child
short bowel syndrome (SBS)
Short bowel syndrome (SBS) is a malabsorptive condition most often caused by massive resection of the small intestine. Clinical disease is only weakly correlated with the amount of intestine that is resected because of the highly variable length of the human small bowel and the remarkable ability of the bowel to compensate for bowel resection. Therefore, the best definition of SBS is based upon intestinal dysfunction, ie, the presence of significant malabsorption of both macronutrients and micronutrients. SBS is the most common cause of intestinal failure, a term that describes the state when an individual’s gastrointestinal function is inadequate to maintain his or her nutrient and hydration status without intravenous or enteral supplementation. Other causes of intestinal failure include diseases or congenital defects that cause severe malabsorption, bowel obstruction, and dysmotility (eg, pseudo-obstruction).
The purpose of the collection
purchase of special devices, medicines and expendables for parenteral food
History of the child
Veronika Kazyra is the first and long-awaited child in the family. All was good during the pregnancy, but on the last planned ultrasonography doctors made a much-feared diagnosis: diaphragmatic hernia. Veronika was born on January 23, 2019 on the term in 39 weeks. But the girl was taken away in resuscitation at once.
Veronika was very ill, special medicines forced Veronika’s heart to fight. And on January 25 was performed the first operation . All passed well, but … it took place a necrosis. As result —a new diagnosis: short bowel syndrome (SBS).
« Now my daughter eats 50 ml of specialized mix with all necessary substances and minerals, but only the small percent is soaked up. Parenteral food which comes directly to blood was picked up for this purpose and gives all necessary for the full-fledged growth and development.» —Hanna, Veronica’s mother shares.
Veronika’s mother learns to handle with a special long-term catheter, to gather up droppers and to energize the daughter to irrigation. The hospital is a constant risk of heavy infections and terrible consequences. Therefore the family very needs the support for raising of funds for purchase of special devices, medicines and expendables for parenteral food at home. Amount sum is too high for parents and they ask for help.
Together we can give a chance for Veronika’s childhood of full value in the family circle!