Aliaksandra Urubleuskaya

26.03.2016, Vitebsk
Саша
32
All collected money
41 432 USD
Necessary to collect
26 590 USD

Diagnosis of the child

esophageal atresia (type III), vocal cords paralysis; tracheostoma and gastrostoma carrier

Esophageal atresia is a congenital medical condition (birth defect) that affects the alimentary tract. It causes the esophagus to end in a blind-ended pouch rather than connecting normally to the stomach.

Tracheostomy is the accepted technique for long-term airway control, especially for protection against upper airway secretions and respiratory failure. When a tracheostomy tube is in place, the child breathes through the trach tube instead of through the nose or mouth. Therefore, very little air passes through the nose, mouth, or larynx. 

Gastrostomy is the creation of an artificial external opening into the stomach for nutritional support or gastric decompression. Typically this would include an incision in the patient’s epigastrium as part of a formal operation. It can be performed through surgical approach, percutaneous approach by interventional radiology, or percutaneous endoscopic gastrostomy (PEG). The opening may be used for feeding, such as with a gastrostomy tube.

The purpose of the collection

diagnosis and treatment at Boston Children's Hospital in the USA

History of the child

Aliaksandra Urubleuskaya needs our help again. The girl was born with serious pathologies – esophageal atresia (type III), vocal cords paralysis; Aliaksandra is also tracheostoma and gastrostoma carrier.

Esophageal atresia is a congenital medical condition (birth defect) that affects the alimentary tract. It causes the esophagus to end in a blind-ended pouch rather than connecting normally to the stomach. It comprises a variety of congenital anatomic defects that are caused by an abnormal embryological development of the esophagus. It is characterized anatomically by a congenital obstruction of the esophagus with interruption of the continuity of the esophageal wall.

But the first miracle was done by our donators – together we have raised founds for necessary treatment. The second miracle was done by the doctors in Boston – they have carried out two difficult operations.

Now the girl has an opportunity to sleep and not to wake up for medical manipulations at night. But, unfortunately, Sasha still breathes through a plastic tube in her throat. Alexandra has a chance to remove the tubes after some time and live a normal full life without restrictions and deprivation. But to do this, she needs to be diagnosed and she should continue treatment at Boston Children’s Hospital.

The pathology of the girl is extremely rare. Now Alexandra needs to obtain instrumental examinations and receive recommendations for the treatment. But the costs are too high – 41 432 USD.

Sasha’s family sincerely hopes for your help!

I want to help!